jmichelle36, I really hate reading post like this. No one who is a patient should feel this way. I hope Collen is monitoring and can give some advice.

First having pain around the pacemaker site is not abnormal. You had surgery. As the anesthesia and pain medications wear off you will start feeling pain. Also you have a foreign body in you. It is going to hurt and feel very different for a long time. What happens is body will eventually encapsulate around the Pacemaker and seal it off. This takes time but it WILL get better.

Just remember you also have wires going to an from pacemaker. So those wires are also foreign bodies and can cause irritation and pain.

I was told it would take about 1 year to become used to it. But your pain should subside. Do not get into rubbing the areas though as will just irritate more. I got mine in 2006 and on my 3rd one. Mine is under my chest muscle so I had even more healing and pain/discomfort because of that.

Did you get a AICD/Pacemaker? Or did you get Pacemaker only? Most times you get both unless it is just low pulse rate.

I assume you were NOT at a Mayo Clinic? You would have been seen ASAP if you complained about excessive pain. What type of pacemaker did you get, Boston Scientific etc. You can reach out to them also and get advise. Did anyone suggest ice pack over surgery site.

The pace clinic is only there to adjust and make sure your pacemaker is working as programmed. You really need a good cardiologist and specifically an electrophysiologist who is an expert in electrical parts of heart and AICD and Pacemakers.

My suggestions is go to a medical facility that has electrophysioligist. I can send a portal message to any on my care team, as well as call. But I am at Mayo Jacksonville.