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@darby413

I have decided to do pain management therapy with a psychologist. I was recently told I have all the markers of fibromyalagia but the doctor wouldn't "formally" diagnose me with fibro. I have been through a battery of tests to rule out other things and thank the good Lord those were normal. My RA is under good control based on my sed rate and CPC. So...the reason I was given for my terrible arm pain is myofascial pain syndrome after my back surgery and neck fusion this past May. I cannot accept this is normal healing!

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Replies to "I have decided to do pain management therapy with a psychologist. I was recently told I..."

Hi @darby413 - I'm not sure if it helps to know that others also have RA and fibro (I do). It's the worst combination - RA fatigue along with that unrelenting and deep-seated, muscle/fascia pain. I don't know why there's so much fuss about diagnosing fibro. I think the criteria has been changed in recent times so it no longer relies on identified pressure points being painful (thank goodness!) but it can still be really hard to get a diagnosis - like you've experienced. TBH, it probably doesn't matter all that much what it's called (other than a pain in the &** - can I say that here? :). If you get good therapists and they give you time to explain what's going on, they should be able to help. I have done a number of chronic pain / central sensitisation courses and treatments and they all help to different degrees. Some have been with psychologists and others with specialised physios. Unfortunately there's no magic pill which is what I would dearly love! If it helps at all to hear, one thing that helps me enormously is myotherapy - I've been lucky enough to find a myotherapist who understands fibro and treats me however I am when I show up. Sometimes my legs are painful, sometimes my back, and sometimes I get pain around my shoulders / rib cage. Keep searching for something that helps - you're right, nothing about fibro is 'normal'. Hang in there. xx