← Return to Essential Thrombocythemia: Looking for information and support

Discussion
Comment receiving replies
@mdterp76

Get on the email list for the MPN Foundation and watch their excellent programs and videos. https://www.mpnresearchfoundation.org/

I was just diagnosed in Feb 2023, take iron and baby aspirin daily, HU 2x week at 500 mg each, and just try to live my life. Yes, I do get fatigue from the HU, plus dry skin, and dry eyes, but I need to take the HU to remain stable and prevent thrombotic events. I'm a high-risk with ET, Jak2, and over 60. Have never had a symptom; just high platelets on a regular CBC at my physical in Jan. 2023. Keep active and busy. We can manage this for a long time with this illness. Take care!

Jump to this post


Replies to "Get on the email list for the MPN Foundation and watch their excellent programs and videos...."

Do you think the fatigue comes from the HU or the ET or aging or co-morbidities? It's often really hard to figure out once you hit 60 or 70. I was exhausted all the time before HU and had to take early retirement. HU seemed to perk me up a bit.

I agree. Been doing it over 30 years.