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Dacogen/Venclexta not working?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (35)Comment receiving replies
@mriopka, It’s been a month since you wrote into the forum about your diagnosis with AML. This has to be a particularly upsetting for you with raising a young family.
From what you’ve written it sounds like you have a wonderful cancer team working with you to find answers. I hope you’re doing ok. If you need moral support there are several of us @alive @edb1123 @kt2013 and others who have had AML with bone marrow transplants and would love to help you along this path.
Have there been any changes with your medications where you’re seeing some improvement in blood numbers? Have you learned anymore about a potential bone marrow transplant?
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@mriopka I was hospitalized immediately after diagnosis to undergo 7+3 chemo, then MEC chemo, and finally Venclexta+Vidaza before I got into remission because I had refractory AML. I then had consolidation chemo and a bone marrow transplant with an unrelated donor from the registry, a perfect match! That was 3 years ago at age 60 and I’m doing great! As Lori said, it wasn’t easy - nausea, weakness, loss of hair, fatigue. I also got a form of pneumonia 5 months later that put me in the ICU for about 15 days. But now I’m living a normal, active life! Don’t be afraid to ask for help from friends and family. Most people will be happy to help if you tell them what you need! Let me know if I can be of any assistance or support.