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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@nanakpm

I’ve had the same experience. Very quick response when I first started taking Camzyos in May. But my gradient did not go down and it’s high - 130, and higher with val salva. I asked for higher dose starting in August. I have more energy most of the time but still have angina sometimes. Waiting for next echocardiogram in a few weeks. One doctor I consulted says stay with it. My cardiologist is pushing for surgery. My gut says stay with Camzyos. Biggest distress is differing medical
opinions.

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Replies to "I’ve had the same experience. Very quick response when I first started taking Camzyos in May...."
katiekins | @katiekins | Feb 13 6:32am

I started Camzyos a few weeks ago and immediately felt much better (feel ok most of the time anyway) started with terrible side effects headaches etc…. Came off for a week and restarted for several days and side effects returned. Now free of the drug but feel absolutely terrible. I am worse than before and now am looking at surgery as could not get up small hill yesterday Which is normally fine for me. Thus drug has changed something in me. Very very upset but glad for all you lucky people that it is working for.

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