Hi @laurinea, I understand what you are going through. My neuropathy started 18 months ago and diagnosed MGUS. Also found waldenstoms but my oncologist hadn't seen neuropathy this bad for WM so my neurologist ordered an Anti-MAG blood test, I was > 70000, so they put me on high dose prednisone (3 months so far). My neuropathy is improving - only below the knees now. So, it might be worth asking for this test. the more knowledge the better.