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Transplant: Vaccines: Covid, Flu, RSV

Transplants | Last Active: Oct 14, 2023 | Replies (44)
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@valbob

He is not back on cellcept yet, because of low wbc. They took him off that on 8-14-23 when his wbc dropped to 1.5. But instead of going up it continued to drop. 9-30-23 they put him on valcyte, for the cmv and by 9-18-23 his wbc had dropped to 0.8 so he had the injection and the next week it came up to 2.8. and the week after that 2.9, I thought we were going in the right direction. When they took him off valcyte a week ago, because his CMV has been undetected for 2 weeks, I thought it would be even higher but instead yesterday it was 2.7. He is only on tacrolimus, 0.5 mg twice a day, prednisone was stopped over 3 months ago. No other anti-rejection meds at this time - which is worrisome. I have to just trust the clinic, which I do, but still worry.

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Replies to "He is not back on cellcept yet, because of low wbc. They took him off that..."
hello1234 | @hello1234 | Oct 10, 2023

Hi @valbob 😊
Thank you for all the details. It sounds like my story. I am very hopeful that now that your husband is off of Cellcept, off of Valcyte, off of Prednisone and his CMV just resolved, his WBC should begin to recover in the coming weeks.
Does your husband test weekly? Unfortunately, everything on that long list can contribute to a low WBC.
Sometimes the body just needs to recognize that the coast is clear and it is now able to produce WBC again. After Cellcept, Valcyte and active CMV, it took a few weeks for my WBC to get into the low range. I was down to 1.0 too and my WBC recovered after a few weeks of undetected CMV.
Does Transplant feel pretty confident that your husband's WBC will start to recover in a few weeks now that CMV is negative and no Valcyte?

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