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Liver transplant - Let's support each other

Transplants | Last Active: 6 days ago | Replies (1606)

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@warrio202105

Fatigue is common with transplants. Dr. Kenneth Miller at Tufts Medical Center said that it can go away but it also can last forever. He has several ways to help his patients with fatigue. Google him. I am two years post and I am still suffering from fatigue. I was always very active before my unexpected liver transplant but not anymore I don't go or do anything because being fatigue. I also have narcolepsy, my primary care doctor manages my narcolepsy and I have spoken to him numerous times. He refuses to help me he said that I need to talk to my transplant team. I discussed it with my liver specialist he said that with everything he has to do that he doesn't have the time. I agreed with him I told him that my primary care doctor should be the one that takes care of it. Now I have to find a new primary care doctor but that's okay I really didn't like him. Has anyone got any help for fatigue if so what was it? Thanks

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Replies to "Fatigue is common with transplants. Dr. Kenneth Miller at Tufts Medical Center said that it can..."

@warrio202105, Welcome to Connect. I am sorry to read that you are being left on your own to deal with fatigue after your transplant. In reading that you are also affected with narcolepsy. I am not familiar with narcolepsy myself, but did have a student once who suffered with it. And he fell behind in class work. Once he received the diagnosis and the right treatment his life in the classroom changed dramatically.

Here is information about Narcolepsy from Mayo Clinic. I hope that it provides some helpful information.
https://www.mayoclinic.org/diseases-conditions/narcolepsy/diagnosis-treatment/drc-20375503

Have you ever seen a Sleep Specialist?

@warrio202105, you may also wish to join this related discussion:
- What helps with post liver transplant fatigue?
https://connect.mayoclinic.org/discussion/post-liver-transplant-fatigue/