Lots and very easily evoked at first: POTS, Post-exertion malaise in unpredictable ways — hard to know at first what was too much, unexplained heart palpitations, headaches, severe sleep disruptions, sensitivity to light, inability to read or use a computer screen, and probably more than I want to remember.

It first started two weeks after getting over covid. My stomach ballooned up and then about two weeks after that I had awful stomach pain and could not tolerate anything in my stomach, even water was hard on it. I had an upper GI scope and two lower GI scopes and both showed nothing. I tested negative for H.Pylori too or any other bacteria for that matter. I DID have a HYROGEN breath test and was POSITIVE for that. I was treated with XIFAXAN oral antibiotic for one month twice per day and that helped me be able to eat again. I had lost 25 pounds and I was 121 pounds to start. At 5'7 I was down to an all time low of 98.6 lbs at one point. I currently am still bloated after I eat anything and I look 4 months pregnant by the end of the day but I now weigh 104 lbs. My body tremors and I have zaps or vibrations in my legs and torso and I feel very irritable all the time. When I am not tremoring I am not irritable though. I am very sensitive to light and sound. I seems to sweat just before awakening every day but I do NOT sweat during the night at all. MY TRYPTASE blood levels are over the norm and now the IMMUNOLOGIST I am seeing wants a bone biopsy to rule out systemic mastocytosis post covid. ALL OF MY TEETH also feel like I have bitten down on a cold ice cream blob but the dentist I saw said there is nothing he can see to cause this. No leaking fillings or anything. I have seen over ten specialists in the last year. no one other than a FUNCTIONAL MEDICINE DR has even tried to help me in a timely manner. They put me on MAST CELL STABILIZING MEDS and non steroidal anti-inflammatories because if THIS IS MAST CELL DISEASE post covid, then NSAIDS are the worst thing you can put in your body. SO I am on LOW DOSE NALTREXONE 4.5 mg ( was titrated up to that dose) every night. I am also on KETOTIFEN 1 mg every 12 hours along with an over the counter anti-histamine ( NOT BENADRYL!) I am also being ruled out for LYME DISEASE POST COVID because a strong virus can bring out smoldering lyme disease...many have it and live with it until something strong brings it out. In terms of other long covid symptoms...my legs feel weak even though strength tests prove otherwise and I feel brain fog and dizzy on and off. I have constant upper quadrant pain that feels like a rib is digging in to me and have had MRI's(2) of the abdomen and a HIDA scan to make sure my gall bladder and pancreas and liver, spleen were all ok and they all were. I was in excellent health prior to covid and never took any meds. not even a vitamin because I ate right and all my blood work was always perfect as were my heart rate and blood pressure. I also had feeling of pins and needles in my back and burning down my left arm. My spinal and brain MRI showed nothing to cause that. I was even ruled out for Multiple Sclerosis and other neurodegenerative disorders. I have had over 30 needle pokes and also had a spinal tap and the only thing that keeps showing up as abnormal are my TRYPTASE blood levels. They keep climbing as time passes. I am on a low histamine diet for that (PHASE I) There are several phases. My husband is an angel helping with my share of the house chores. I lose stamina easily too these days but prior to getting covid I was working at a horse barn lifting heavy things and riding horses on a drill team with kids who were 40 years younger than I. I also had a K.I.T test that Immunology ordered and that came back normal which is reassuring but the test has a small margin of error so that is why they want the bone marrow biopsy to rule our systemic mastocytosis. I am a retired RN who worked 36 years bedside and never felt like I ever had an energy issue. Now I feel so decompensated since covid.