1. < Diabetes & Endocrine System

Thyroid and Covid vaccine

Posted by barbfdh @barbfdh, Oct 8, 2023

I have been hypothyroid for about 15 years. I started out at 125mcg of Levothyroxine (extra 1/2 pill on Sun.) and 2 of the 5mcg of Liothyronine. Then after receiving first two vaccine shots in Feb. 2021, my TSH level dropped to .311. They reduced my dosage but TSH levels kept dropping and I was in full hyperthyroidism, which makes you feel like you are going crazy. I was going in every 3 months and getting tested. Finally in December, they took me off all thyroid medication and my TSH went to 33.395. Started me on 50mcg Levothyroxine. Then had trouble getting my TSH levels down but still having both hypo & hyper effects. All of 2022 my TSH levels were high until August when I caught Covid. I was put on Prednisone because having long term side effects from Covid. In Sept. 2022 my TSH level was 1.407 but I think it was because of the Prednisone. Then Dec. 2022 my TSH was back up to 4.351 so increased Levothyroxine to 75mcg. Then March 2023 my TSH was 3.423, they thought still too high so increased Levothyroxine to 88mcg. Then June 2023 TSH was 1.668, but was still not feeling right. So kept me on 88mcg but none on Sunday. Last month my TSH was 3.060. So now I am back to 50mcg of Levothyroxine plus extra 1/2 tab on Sat & Sun and 5mcg Liothyronine. I think I can tell the difference maybe. But it has been almost three years of feeling horrible. I don't remember what normal feels like.

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scolio | @scolio | Oct 8, 2023

What a roller coaster. I'm sorry you're dealing with this!
I'm curious to know if you have any ideas about why you had hypothyroid to begin with?

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1 reply
barbfdh | @barbfdh | Oct 8, 2023
In reply to @scolio "What a roller coaster. I'm sorry you're dealing with this! I'm curious to know if you..." + (show)
@scolio

What a roller coaster. I'm sorry you're dealing with this!
I'm curious to know if you have any ideas about why you had hypothyroid to begin with?

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Not real sure. I did have a stroke in 1998 which did seem to affect different things. Left me with chronic pain on right side particularly leg and foot. Went into early menopause because of hysterectomy (in my 40's). Sure that didn't help either.

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1 reply
scolio | @scolio | Oct 8, 2023
In reply to @barbfdh "Not real sure. I did have a stroke in 1998 which did seem to affect different..." + (show)
@barbfdh

Not real sure. I did have a stroke in 1998 which did seem to affect different things. Left me with chronic pain on right side particularly leg and foot. Went into early menopause because of hysterectomy (in my 40's). Sure that didn't help either.

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Oh, yeah, definitely. I knew someone who had a sort of mirror image experience compared to yours. After she had her thyroid removed, other hormones became unbalanced and she was put on Premarin and things went downhill from there.

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1 reply
barbfdh | @barbfdh | Oct 9, 2023
In reply to @scolio "Oh, yeah, definitely. I knew someone who had a sort of mirror image experience compared to..." + (show)
@scolio

Oh, yeah, definitely. I knew someone who had a sort of mirror image experience compared to yours. After she had her thyroid removed, other hormones became unbalanced and she was put on Premarin and things went downhill from there.

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What I am really wondering, was anyone else's thyroid affected by the Covid vaccine?

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1 reply
Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Oct 10, 2023

Thyroid conditions alone are challenging enough to deal with. Having something like COVID makes it all the more difficult. There is still so much confusion regarding COVID and now there are many strains of it. Initially when vaccines became available it was under an “emergency use authorization”. Maybe they still are. There was a way of reporting issues potentially related to having received a vaccine. It was something called VAERS and could be done on paper, by phone and online. Have you talked to your provider about your concerns regarding COVID & vaccines in regard to your thyroid conditions?

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1 reply
difrnt1 | @difrnt1 | Oct 11, 2023
In reply to @barbfdh "What I am really wondering, was anyone else's thyroid affected by the Covid vaccine?" + (show)
@barbfdh

What I am really wondering, was anyone else's thyroid affected by the Covid vaccine?

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Yes ma'ma I did. Took 5 medical professionals and 2+ years to find out the Vax attacked my thyroid. My NP told me I am her 3rd patient with all the same symptoms after C-Vax. Never again will I be a guinea pig. I'm now diagnosed with Hashimoto's thyroiditis.
It also reactivated EBV that I didn't know I ever had🤷‍♀️

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1 reply
barbfdh | @barbfdh | Oct 11, 2023
In reply to @cehunt57 "Thyroid conditions alone are challenging enough to deal with. Having something like COVID makes it all..." + (show)
@cehunt57

Thyroid conditions alone are challenging enough to deal with. Having something like COVID makes it all the more difficult. There is still so much confusion regarding COVID and now there are many strains of it. Initially when vaccines became available it was under an “emergency use authorization”. Maybe they still are. There was a way of reporting issues potentially related to having received a vaccine. It was something called VAERS and could be done on paper, by phone and online. Have you talked to your provider about your concerns regarding COVID & vaccines in regard to your thyroid conditions?

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After my thyroid levels started going down, I started researching Covid vaccine side effects. In 2021 I could only find one site that referenced Covid vaccine & thyroid. I showed it to my endocrinologist who at the time shrugged it off. Since I have to go in every 3 months, I just kept stating the same thing until she finally started putting it into my notes. I will look into reporting this to VAERS. Thanks for information.

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debs4246 | @debs4246 | Oct 16, 2023
In reply to @difrnt1 "Yes ma'ma I did. Took 5 medical professionals and 2+ years to find out the Vax..." + (show)
@difrnt1

Yes ma'ma I did. Took 5 medical professionals and 2+ years to find out the Vax attacked my thyroid. My NP told me I am her 3rd patient with all the same symptoms after C-Vax. Never again will I be a guinea pig. I'm now diagnosed with Hashimoto's thyroiditis.
It also reactivated EBV that I didn't know I ever had🤷‍♀️

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Yes and I won't be getting anymore vivid shots

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1 reply
difrnt1 | @difrnt1 | Oct 16, 2023
In reply to @debs4246 "Yes and I won't be getting anymore vivid shots" + (show)
@debs4246

Yes and I won't be getting anymore vivid shots

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Neither will I.

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