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Transplant: Vaccines: Covid, Flu, RSV
Transplants | Last Active: Oct 14, 2023 | Replies (44)Comment receiving replies
Hi @valbob 😊
You are so right about the trial and error process to get the immune suppression meds into the "sweet spot" between no rejection and no infection. It's an ongoing tweaking process. Now that your husband is negative for CMV and back on Cellcept, is it a reduced dosage? (I assume he also takes a version of Tacrolimis and maybe Prednisone too?). When my WBC got that low, I took Procrit shots at the cancer center each week until my Cellcept dosage was reduced and my WBC came back into range. Was your husband's WBC better when he was off of Cellcept?
Replies to "Hi @valbob 😊 You are so right about the trial and error process to get the..."
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He is not back on cellcept yet, because of low wbc. They took him off that on 8-14-23 when his wbc dropped to 1.5. But instead of going up it continued to drop. 9-30-23 they put him on valcyte, for the cmv and by 9-18-23 his wbc had dropped to 0.8 so he had the injection and the next week it came up to 2.8. and the week after that 2.9, I thought we were going in the right direction. When they took him off valcyte a week ago, because his CMV has been undetected for 2 weeks, I thought it would be even higher but instead yesterday it was 2.7. He is only on tacrolimus, 0.5 mg twice a day, prednisone was stopped over 3 months ago. No other anti-rejection meds at this time - which is worrisome. I have to just trust the clinic, which I do, but still worry.