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Transplant: Vaccines: Covid, Flu, RSV

Transplants | Last Active: Oct 14, 2023 | Replies (44)

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@valbob

Thank you for sharing your experience. They stopped his Cellcept when his wbc went so low. They put him on 1800 mg of valcept, which was stopped last Friday, after 2 weeks of undetected cmv blood tests. The valcept played heck with his kidney numbers. Tomorrow, after his weekly blood tests, they may put him back on the cellcept. It has been an ongoing trial and error. Of course we wear masks when not in the house. Since his extreme drop in his wbc, two weeks ago it was at 0.8. the only place he goes is dr. appointments. We realize that while needed, a hospital and dr's office is the worse places to avoid sick people, but what can you do?

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Replies to "Thank you for sharing your experience. They stopped his Cellcept when his wbc went so low...."

Hi @valbob 😊
You are so right about the trial and error process to get the immune suppression meds into the "sweet spot" between no rejection and no infection. It's an ongoing tweaking process. Now that your husband is negative for CMV and back on Cellcept, is it a reduced dosage? (I assume he also takes a version of Tacrolimis and maybe Prednisone too?). When my WBC got that low, I took Procrit shots at the cancer center each week until my Cellcept dosage was reduced and my WBC came back into range. Was your husband's WBC better when he was off of Cellcept?