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A month into my diagnosis with PMR

Polymyalgia Rheumatica (PMR) | Last Active: Nov 14, 2023 | Replies (57)

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@lungranger77

Hi and thanks for sharing. Not sure yet if the empathy is helping me or feeding into the low lites too much. I too struggled a couple of months wondering what was really happening to me. Hips freezing up and shoulder pain so bad I couldn't get out of bed without help. Dx Feb. 70 yr old male. Had to stay on 20mg first month and a half then weaning seemed to go ok until last month flare up from cooler weather change. I'm a retired RRT and I never heard of PMR. Thought I needed rotator cuff surgery and set up an appointment with a favorite Orthopod. Even got x rays prior to appointment. My wife insisted that I check in with my attending. Thank God he new immediately what it was. I think it's a "crap shoot" for me to try and pin down the source/origin of my PMR. My Rheumatologist says that a virus is suspect and that there may be a vaccine down the road. I had recent eye surgery, dental work, vaccine, tonsillitis six months before. Started CBT once a week after my first month to help with my anxiety and depression. Getting used to the early wake up/insomnia-challenging. And have to be sensitive to my lack of physical reserve on exertion. It is strange to be the patient now instead of the caregiver. What's helping me is the therapy, moderate exercise, plant based protein drinks with a healthier diet, and prayer. Tylenol if necc. It's also frustrating to go up and down on the prednisone. A strange reality for me. My wood craft hobby and gardening had to be toned down significantly. I guess we all half to grieve the loss of some things because the PMR. Hope you experience better outcomes soon.

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Replies to "Hi and thanks for sharing. Not sure yet if the empathy is helping me or feeding..."

So far everyone else has written my story or journey with PMR. I get it, those experiences are surely shared.
Thank you