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Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)
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Good morning. I was diagnosed with MGUS IgM Kappa with a small fiber neuropathy in 2012. Numbers had been stable but last three labs have shown increase in Kappa and FLC ratios.
Replies to "Good morning. I was diagnosed with MGUS IgM Kappa with a small fiber neuropathy in 2012...."
@anne13 Welcome to Mayo Clinic Connect. I see you have been a member here for quite a while, and this is your first post.
It's not unusual to go a long time with no marked change in numbers, when we have MGUS. My MGUS was also IgM Kappa. When you say there has been an increase in numbers, is your medical team concerned? Have they talked about doing anything further for testing?
Ginger
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Curious to hear more from you and others and possible symptoms. I‘ve been diagnosed a year ago with MGUS IGM Kappa Light Chain and in 2019 with neuropathy. This year during an inpatient neurology check up I was diagnosed with small fibre neuropathy. My oncologist/haematologist doesn‘t think there is a connection as my neuropathy is developing very slowly. I just had my 6 months blood check last week and awaiting feedback from my specialist. Any suggestions or situations I need to be especially careful with.