Sigh...I knew that resource was a long-shot. It sounds like your friend is tremendously creative and resourceful in finding ways to get her needs met. I am always taking recommendations by physicians and other providers and then researching what else I can do, while avoiding side effects, etc. I honor her willingness to write a book so that others can learn from her experiences and discoveries. I send my best wishes and faith that she will sort this out. If I hear anything from my sibling that might help I'll post again.