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Have you been cured of POST COVID?

Post-COVID Recovery & COVID-19 | Last Active: Mar 25 9:27am | Replies (116)

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@annebp

My Long Covid symptoms are much improved 9 months to a year after my 2nd Covid infection.
1st infection was a Delta Variant/pneumonia co-infection 10/21. The 2nd infection was in August 2022.

I assembled a team of specialists with much frustration due to long waitlists for doctors and scheduling appointments 2-9 months out.
Primary Care Doc was helpful with recommending specialists in my insurance network. Sometimes I would work with a registered Nurse Practitioner rather than wait for a doctor to become available. A good NP will spend an hour with you…which is how long it takes to tell a long Covid story.
- Pulmonologist
- Neurologist
- Physical Therapist
- Social Worker for Cognitive Talk Therapy
- Psychiatrist
- Gastroenterologist
- ENT Doc
- Allergist/Immunologist
- Endocrinologist
- YMCA pool time and gentle yoga.
- Walking my dog in the woods with friends.

I got the idea that I needed a team of doctors from an article I read about the old Swiss Alps Tuberculosis Clinics that were being converted into Long Covid Clinics. Traveling to Switzerland wasn’t an option, so I have had to manage my own recovery.

I was suffering from chronic diarrhea post Covid infection. My Gastroenterology NP and Doctor prescribed Xifaxan off label for 2 weeks and stool samples to confirm that I did not have C Dif or parasites. The virus had not flushed out of my system, and was lingering in my intestinal tract. My symptoms cleared up and I felt much better, had more energy, clearer mind, and started riding my bike. Then I got a 2nd Covid infection and a relapse of diarrhea. I took another 2 week dose of Xifaxan and again that cleared up my symptoms.
For rapid heartbeat and migraines, I was prescribed and continue to take Propranolol. I also spent several months working with a Physical Therapist who did dry needling and recommended specific exercises for headaches and to relieve tension and body aches from the coughing fits that had racked my torso during Covid.
The ENT prescribed a short course of prednisone for ear swelling and Tinnitus. Also Physical Therapy dry needling treats ear and face pain and Tinnitus. I also did some Vestibular Therapy for dizziness and balance issues with my PT.
My Pulmonologist nurse prescribed Spiriva Respimat to open my Bronchial airways and she said that her Long Covid patients were responding well to Spiriva Respimat 1 or 2 puffs in the morning. It helped me to be able to walk my dog farther without feeling like I needed to sit down on neighbors’ steps to rest halfway.
My Psychiatrist had me do a cheek swab and submit to Genomind for psychiatric genetic testing. I tend to have weird reactions and sensitivity to inactive ingredients in pills and tablets. Basically ingredients that extend shelf life in medications make my face turn red and sinuses swell up.
He prescribed Pristiq 25 mg daily which is an SNRI and extended release. It is helping me to feel more even keeled. My Genomind results suggested that an SNRI would be better suited for my metabolic processes than an SSRI. I had not felt any better mood-wise when I tried Zoloft.
My results said regular exercise would improve my mood as well.

My Endocrinologist tested my Thyroid levels and increased my Synthroid dosage to 75 mg each morning. I got approved for name brand only because I have sensitivity to inactive ingredients in the generic. Also name brand Synthroid has more consistent levels of the active ingredient, whereas the generic versions can vary. My hair started growing back. I also started Nutrafol supplements and a hair tonic Phytocyane for temporary hair loss.
I started Aquafitness classes at the YMCA and enjoy Body Balance classes.

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Replies to "My Long Covid symptoms are much improved 9 months to a year after my 2nd Covid..."

Wow! What a marathon! I live in Canada and not sure what your insurer covers with all this treatment, but other than traditional treatment covered by our government health care plans, we're on our own for alternative treatments (which I've been pursuing for 2+ years of LC). I'd love to try out much of what you describe, but I can't afford yet more on my own dime.