I'm sorry you've had to endure so much!
I'm aware of how quick it is once it becomes acute, having been there before, my question is about how long the genetic markers take to become AML.
The almost 5 months in-patient treatment got those down to zero, but now they're beginning to show back up. At first detected in a bone marrow biopsy, then another biopsy and showed very low level in the blood too, and since then I've had 2 more blood tests that show 2 out of three markers positive but growing extremely slowly.
My doctor thinks I'll have roughly a year before onset/death if I choose no treatment, but it could be 2 ish at this rate. That's awesome if I have 1 or 2 good years left where I have no chemicals making me sick. I'll be able to travel here and there, do my pottery and spend amazing time with my children. I want to stay well until I'm not. I don't want to take meds that will make me sick.
I am totally at peace with all this, just trying to find out if anyone has watched their markers climb slowly like this.
What markers did/do you have? Mine are NPM1, IDH2 and FLT3.