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Mast Cell Activation

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (125)
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@caw67

There is an incredible Facebook page for Mastocytosis and Mast Cell Disorders. Over 19,000 people in 2023. Loaded with info and TMS org links.
- low histamine diet
- antihistamines, leukotriene inhibitors
- avoid triggers
- find an immunologist/ allergist that specializes. Oncology/Hematology also. Relatively unknown, so find someone who listens and is experienced in MCAS.

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Replies to "There is an incredible Facebook page for Mastocytosis and Mast Cell Disorders. Over 19,000 people in..."
Lori, Volunteer Mentor | @loribmt | Oct 7, 2023

Hi @caw67. Welcome to Mayo Connect and thank you for the link to information for people with Mastocytosis and Mast Cell Disorders. It always helps to know you’re not alone in a diagnosis. That’s the goal of the Connect forum; To bring people together who share common medical conditions in an effort provide information, support and to offer hope.
Do you or a loved on have a Mast Cell disorder?

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rosemammag | @rosemammag | 6 days ago

What’s the fb page called?

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