← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@seattleite

Hi all - I am looking to learn from others' experiences and knowledge! After 4 months of Prednisone at 20-25mg for PMR, I started Kevzara last June and then weaned prednisone to 0mg over 16 weeks (I read that in clinical trial of Kevzara the prednisone was weaned over 14 weeks). Over past week have had a bit more shoulder and hip burning off and on, but without stiffness and still have a low normal CRP and ESR. Have others had shoulder and hip pain and still successfully weaned off immunosuppression without getting a full relapse of PMR? (my neighbor successfully weaned with aches and pains and has been off immunosuppression x 1.5 years-- but she is just one person). Thank you all, appreciate learning your stories!!

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Replies to "Hi all - I am looking to learn from others' experiences and knowledge! After 4 months..."

Welcome @seattleite, You are not alone! I think you might find the following discussions helpful:
--- Starting treatment with Kevzara: My journey: https://connect.mayoclinic.org/discussion/first-dose-of-kevzara/
--- Kevzara (sarilumab) to treat PMR: https://connect.mayoclinic.org/discussion/kevzara-sarilumab-to-treat-pmr/.

Have you made any lifestyle changes to see if they help with the PMR symptoms?