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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1623)

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@rosemarya

@hdillon7, Congratulations on your recent liver transplant. I know that you are thrilled about the good labs and test results!
My transplant was 14 years ago at Mayo Rochester. I had to laugh at your comment... "please don't tell then that I have been "through a major surgery. I know that;..." I remember that one quite well! The one that I get now is, "You mean you still have to take those medicines? You look so well?"
Related to your pain, I notice that any slight twinge of pain or even a twitch in the area of my liver transplant or my kidney transplant draws my attention. Currently, I am post cataract surgery and my full attention is on anything that is left eye or vision related. You are absolutely correct about listening to your body! I learned real quickly that over-doing meant discomfort, pain, or tiredness. I also learned since my transplant that healing, for me, took longer than pretransplant. For instance, if I get a cold, or a cut, or a bruise, or a sprain,...it takes me longer to heal. If doctor says 10 days, I can plan on 2 weeks. I hope that your pain which is likely part of healing will become less. I hope that one day you will suddenly realize that you don't hurt anymore!

Your rambling is good! I like to call it, "Sharing your experience" .
What is something you would like to share with someone who is currently waiting for a liver transplant?

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Replies to "@hdillon7, Congratulations on your recent liver transplant. I know that you are thrilled about the good..."

I really can't say a great deal about the waiting process. I was a 0.001 percent chance. A blessing of God, in that I got placed on the list at 3pm and got "the call" at 7 pm. and was out of surgery by noon the next day.
I had gone through all of the preliminary stuff for about 6 months. However, when I got bad, I got really bad and my MELD wentfrom mid 20's to 34 virtually over night. I am not a patient person so I am truly doubly blessed by not having to wait. I was teaching two weeks prior to transplant.
With that being said, I would advise anyone to trust the process. These people are the best in the world. Try to keep your strength and body mass (you will need it). Last but not least have a caregiver that you trust and is patient with you. You will need them and they will definately need patience with you.