Hello @laurinea ,

Sorry you are having to go through this. It can certainly take its toll on you with worry and anticipation. I to have MGUS and experience leg pain. This disease affects everybody differently, and no two of us are exactly the same. I encourage you to write down all of your questions and all of your concerns and take those to review upon your first official visit. Try to get all of the clarity that you possibly can during that visit and write down the responses as many times we forget what they have told us later.