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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Jun 17 9:11am | Replies (504)Comment receiving replies
I have been on Hydrea 500 every other day since May, the last month MWF. Within the last several months my hair is falling out and it is a handful when I wash it. My Hematologist recently suggested I use a shampoo and cream rinse with Rosemary in it. I have been doing this and haven't seen a sigificant decrease in losing hair.
I also have been getting leg cramps at night.
Any suggestions would be welcomed.
Thank you.
Replies to "I have been on Hydrea 500 every other day since May, the last month MWF. Within..."
Have you also been given Allopurinol to prevent gout and cramps - stops the build up of crystals. Im on Hydrea 500mg M-S Sun 1000mg 75mg Aspirin - 300mg Allopurinol daily on top of all the other meds - I'm between ET Jak2 - chronic prefibrotic myelofibrosis diagnosed May this year - feel fatigued and have some good days.
Thank you for your comment, it has given me hope!
My hair smells great even if I have less of it.
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I've been on HU for 3 years. The first year was the worst, hair loss, bone pain, diarrhea, multiple BM daily. After a year my gut got used to HU, my hair is back to normal, still have some bone pain.....and of course fatigue, which I just soldier thru. for leg cramps I make sure I eat fruit & veggies high in potassium???? works for me......This year my skin is very flakey, don't know what's causing it.....