Replies to I have been on Hydrea 500 every other day since May, the last month MWF. Within…

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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)

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@ldz

I have been on Hydrea 500 every other day since May, the last month MWF. Within the last several months my hair is falling out and it is a handful when I wash it. My Hematologist recently suggested I use a shampoo and cream rinse with Rosemary in it. I have been doing this and haven't seen a sigificant decrease in losing hair.
I also have been getting leg cramps at night.

Any suggestions would be welcomed.

Thank you.

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Replies to "I have been on Hydrea 500 every other day since May, the last month MWF. Within..."

1995victoria | @1995victoria | Oct 6, 2023

I've been on HU for 3 years. The first year was the worst, hair loss, bone pain, diarrhea, multiple BM daily. After a year my gut got used to HU, my hair is back to normal, still have some bone pain.....and of course fatigue, which I just soldier thru. for leg cramps I make sure I eat fruit & veggies high in potassium???? works for me......This year my skin is very flakey, don't know what's causing it.....

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jola13 | @jola13 | Oct 7, 2023

Have you also been given Allopurinol to prevent gout and cramps - stops the build up of crystals. Im on Hydrea 500mg M-S Sun 1000mg 75mg Aspirin - 300mg Allopurinol daily on top of all the other meds - I'm between ET Jak2 - chronic prefibrotic myelofibrosis diagnosed May this year - feel fatigued and have some good days.