My personal journey with long Covid since 7/22 after having Covid for the second time.
3 weeks post positive Covid test in 7/22: Swelling of feet and ankles, then calves, and moving up to knees
10/22 Diagnosed with Lymphedema started at Lymphedema Clinic to control the swelling and get my legs back to normal size
1/23 Medicare and Supplemental Insurance approved Lympha Press for home use. I use it every evening after dinner. Thigh high graduated compression boots for one hour each evening
Wear thigh high compression stockings daily.
Lymphedema is a chronic condition, but I no longer have any swelling using these therapies.
5/4/23 Consult with Dr at USF in Post Covid Clinic.
Faxed requested bloodwork to my PCP, added a supplement, requested rheumatologist appointment to rule out vasculitis.
9/22 Referral to a gynourologist for testing due to sudden incontinence during active Covid in 7/22. Assessed with overactive bladder post Covid. Taking medication daily for treatment of overactive bladder.
4/23- 8/10/23 Requested a referral for physical therapy to relieve shoulder pain and weakness in knees. Went for PT 2X weekly for strengthening knees, and improving range of motion in both arms.
9/13/23 Referral to a rheumatologist. Sent for bloodwork looking for causes of 60 pound weight gain in 6 months post Covid and inflammation causing extreme achiness in the morning causing me to take 1,000 Mg Ibuprofen daily. Sent me immediately for extensive bloodwork. Follow up appt 3 weeks later to review bloodwork. Started on 6 day Methprednisone pack to address inflammatory response throughout my body. Stopped ibuprofen, taking anti inflammatory.
6/2/23 Appointment with NP at Post Covid 19 Clinic
Referral for a sleep study to address daytime sleepiness post Covid.
6/9/23 Met with Pulmonologist/Sleep Study Dr.
6/20/23 Overnight Sleep study. Tech had to put me on oxygen at 2 AM
6/22/23 Diagnosis of severe sleep apnea. Referred for pulmonary function test, 6 minute walking test, and chest X-ray.
6/29/23 Pulmonology testing at hospital outpatient
7/3/23 Prescribed Ventolin Rescue Inhaler to improve post Covid shortness of breath issue on slight exertion. Diagnosed with Restrictive Airway Disorder post Covid
7/17/23 2nd night of sleep study to prescribe proper CPAP equipment. Prescribed nasal pillow CPAP.
8/1/23 Started on CPAP. Improved sleep only waking 1 time to use bathroom. Improved disrupted sleep post Covid waking 5-6 times nightly.
10/3/23 Followup with rheumatologist. Started on 6 day steroid pack and new anti inflammatory med to relieve inflammation.
10/13/23 Upcoming pulmonologist appointment to address chest X-ray, pulmonary function test.