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Just found out I have prostate cancer...
Prostate Cancer | Last Active: Oct 6, 2023 | Replies (53)Comment receiving replies
I had a biopsy last year 3+4 in less then 5% in one core T2. I sent the biopsy to John Hopkins they down graded to 3+3 T1 I have been watching it for a year second biopsy did not show any cancer. I went to 3 docs the urologist wanted to operate the radiologist said I could watch it or get radiation and I went to anothe doc that wanted to give me casodex I now have an appointment at Mayo for a second opinion to see if I can get a consensus with one of the 3 docs I have already seen as to what to do
Replies to "I had a biopsy last year 3+4 in less then 5% in one core T2. I..."
Did you get an MRI with contrast. This allows them to target possible bad areas on the biopsies. If the MRI had a low pirad I would feel better about watching.
I had a pirad of 5 which indicated it was very likely I had significant PC. The biopsy showed 3/4 and I had the RP.
As far as determining whether to have radiation or radical prostatectomy I can not answer because it is personal choice. I have erectile dysfunction and incontinence issues but I had issues with pelvic pain prior to surgery. My goal currently is to try to manage the pelvic pain to a manageable level, it appears to be pudendal neuralgia. The pain is way beyond my tolerance level at times. I can manage my urinary frequency and stress incontinence with protection which I can live with if I can get the pelvic pain down which is stopping me from doing things with my grandchildren.
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Good luck with that "consensus...!
I have a urologist, oncologist, and radiologist, none of them can agree on a specific treatment plan. Add the fact that I usually have a treatment plan in mind based on my clinical data, quality versus quantity of life and homework, well...
Given the clinical data you describe, active surveillance may be a choice to discuss with your medical team and consider. "Active" means labs, whether or not more biopsies, given there are others non-invasive ways of determining whether PCa is present in the prostate.
Kevin