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I recently had a bone marrow aspiration to check for myeloma. I found out today that the results came back as MGUS but do not know what type or level (someone will be in contact with me within a few weeks to discuss going forward). I have been doing some research and I keep reading that there aren't any symptoms however I have quite a few symptoms (the reason they decided to do the bone marrow aspiration). I have peripheral neuropathy in arms, hands, legs and feet (really painful in my heels), pain in rib area (front and back), kidney area, elbows and knees. I also feel nauseous a good deal of the time, get some headaches, get frequent day sweats and lose balance 3/4 times a day (don't get dizzy and don't actually fall, only when I am standing still not walking). In my readings it says if you experience specifically bone pain to see your doctor as this has possibly progressed to myeloma, however I have been told I don't have myeloma. I am just wanting to hear from people regarding these sort of symptoms as I can't handle waiting a few weeks to ask my questions and would like to know from people actually going through this.
Replies to "I recently had a bone marrow aspiration to check for myeloma. I found out today that..."
Hello @laurinea ,
Sorry you are having to go through this. It can certainly take its toll on you with worry and anticipation. I to have MGUS and experience leg pain. This disease affects everybody differently, and no two of us are exactly the same. I encourage you to write down all of your questions and all of your concerns and take those to review upon your first official visit. Try to get all of the clarity that you possibly can during that visit and write down the responses as many times we forget what they have told us later.
I also have night sweats as well as day sweats. When I perspire the odor is entirely different from before. It is like I have eaten a jar of garlic. This is new with no change in diet.
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@laurinea Welcome to Mayo Clinic Connect. We have moved your question over to a discussion already here, so others may see your post!
Getting a diagnosis of MGUS often comes at a time when other things are being investigated. Those tests will show a rise in M protein in the blood, and prompt further investigation.
I daresay hearing a diagnosis of MGUS, when you don't expect anything, can cause anxiety and stress. And those can manifest in some of the symptoms you are speaking of. I know it has been that way with me!
@cheft @pmm and others will want to chime in and tell you their stories, also.
Make a cuppa tea, and pull yourself up to the table. We're here for you!
Ginger