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@kathleenandbob

Hello Dina, Your English is excellent! My spouse has Parkinson Disease (PD) for about 10 years since the very first signs before diagnosis. His symptoms are not the typical: rare hand tremor, Much drooling when napping, His first concerning sign was Sudden Daytime Sleepiness (SDS). While talking to you he would drop of to sleep with no warning. He experiences stiffness. He shuffles and is very bent over at the shoulders. Walking is changing slowly. At 75 his cognition is likely not worse than more older aduts.
We live in New Jersey, USA and have another home in Florida. Symptoms are progressing. His worse problem is sleep disturbance. He is up and down all night long and is chronically tired and getting depressed.
He takes Levodopa 3 times daily. If he takes his afternoon dose later than 16:00 hr. he does notice more stiffness and fatigue.
The specialist for DBS in NJ we saw this summer advised that DBS was more beneficial to those with more motor symptoms...tremors, walking.
The Doctors advice for us was to research clinical trials. There may be some studies he could possibly be involved with. This is tedious work to review abstracts and then contacting the group conducting the research.
http://www.clinicaltrials.gov Studies are international.
Hope this helps you.
We have a relative who has DBS and has gained much improvement of daily activities. His age is also 75.
My name is Kathleen. I am reaching out to the organizations for PD. My husband says I read faster and my background has been in Nursing for 52 years. As an older woman I studied to become a Nurse Practitioner (NP) seeing patients in private practice. My last 10 yrs before retiring I became a college professor teaching nurses to higher degrees. I completed all by course work for my Doctoral degree at Rutgers University before my own illnessess required I stop working. I mention all this...I do understand most of the medical literature I read, hence I am the advocate on that level for my husband. This is a very hard disease to live with. As a caretaker for him, I need advise also.
I am hoping I can do any small thing to help you in any way even if it is only to encourage you to move forward. Wishing you success. Kathleen

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Replies to "Hello Dina, Your English is excellent! My spouse has Parkinson Disease (PD) for about 10 years..."

Are you familiar with Focused Ultrasound. I think it is relatively new but it stops the tremors for a period of time. Thank you