← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@karukgirl

That must be frustrating @tjunca, no wonder you are on the fence about which way to go! You get to decide your course, and it sounds like you have a really good grasp on your situation. It is too bad you can't enjoy the benefits of Camzyos. Does your cardiologist know how much the side effects are affecting your daily life??

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Replies to "That must be frustrating @tjunca, no wonder you are on the fence about which way to..."

Yes. He does. We’ve adjusted mg a couple times. Helps minimally. Dizziness is main problem. Near black outs sometimes. Makes me stumble. Scared to go grocery shopping alone.
He recommended I consult with Mayo Clinic and get all questions answered so I can make a decision when or if I’m ready for surgery.