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Anyone else find the side effects of Hydrea 500MG frightening?

Blood Cancers & Disorders | Last Active: Oct 20 6:16pm | Replies (139)
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@milkweed

Hydroxy unfortunately did not work for me. I was not biased by thinking about side effects. I was on it for about 3 weeks, then my face swelled, I had a fever of 102, I felt like I had a severe flu. Dr took me off and then said let’s restart in a few weeks. Same reaction. I drank some, not a lot, of alcohol then I wonder if it would help now that I’m not drinking at all. .

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Replies to "Hydroxy unfortunately did not work for me. I was not biased by thinking about side effects...."
nohrt4me | @nohrt4me | Oct 3, 2023

Sounds like a good question for the doctor. Was he trying to rule out the flu by taking you off and trying again?

While most people do ok with HU, some have reactions. Some patients I have spoken said they had bad bone pain, but they were given really high doses to start. Hemos seem to have better luck starting people on lower doses and working up as needed.

I hope your doc will get to the bottom of it, maybe by trying anagrelide or another alternative?

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