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Interested in how other caregivers survive

Caregivers | Last Active: Apr 28 9:40pm | Replies (96)
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@jan83404

Oh lena0820! We are nearly twins! My LO and I always rant at our new family member, Lewy, too. He wasn't invited, doesn't pay rent, disturbs our precious sleep, and is a generally annoying intruder! My Lo lost 60 pounds and is just now starting to struggle with dressing. Otherwise, he is fairly capable of performing his ADLs. My son and his family are in Newton (Waban) and often spend summers in Cape Cod. It is beautiful! I will keep you in my daily prayers. By the way, I have a T-shirt that reads "My Patience Were Tested...I'm Negative!" I think all caregivers should have two or three of them!! Good luck with your move to Cape Cod.

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Replies to "Oh lena0820! We are nearly twins! My LO and I always rant at our new family..."
lena0825 | @lena0825 | Oct 3, 2023

WOW --- I'm originally from Worcester & the Cape. My LO from Salem. Family all over Eastern MA. I am trying to write a daily journal (too busy lately) entitled "The Uninvited Companion - Journeying with Lewy". Maybe I'll try to get it published someday.

I keep telling people that I had my patience tested-- and I'm negative. Never did have much patience, but I'm working really hard on it now--as I'm sure you are.

I will keep you in my prayers as well. As a friend told me earlier in the year, our LOs are in God's hands. It helps to remember that & that we caregivers can't fix this. You might enjoy the book "Loving Someone Who Has Dementia: How to Find Hope While Coping with Stress and Grief". I found it invaluable.

Let's hang in there together! Lena

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