← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@karukgirl

Hello @tjunca, and WELCOME! I'm glad you found Mayo Connect and have shared your story with the Hypertrophic Cardiomyopathy group. The Camzyos folks are a wonderful resource as each one of them, like you, are brave for trying this new drug and for hoping it helps them live better lives with HOCM. I encourage you read the shared stories and reach out if you have questions. No two people are the same, and therefore, no two results will be the same either. Camzyos is a magical medication for some, and for others it's not helping, it may even hurt them. I'm glad to hear you have consulted with the Mayo Clinic. I did, and it made all the difference in the world to me. I had open heart surgery a few years ago in Rochester and have my life back thanks to the stellar care, expert medical advice and top notch surgical skills offered at the Mayo. Mayo Clinic has the world's top HCM doctors. How long does your cardiologist want you to try Camzyos?

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Replies to "Hello @tjunca, and WELCOME! I'm glad you found Mayo Connect and have shared your story with..."

He doesn’t have a certain time frame to try the Camzyos. Says it’s up to me how long I want to stay on it as long as it’s helping. It is helping. My heart is better and better. Just looking at the long term. Having to stay on the medicine long term and dealing with then side effects I’m having. Knowing my heart is getting better but I don’t get to feel the benefits because of the dizziness and palpitations I have as side effects.