I can so relate to your experience. You and I could be twins. I try to keep my mind on one day at a time. But unfortunately, that is not always possible. I pray for patience constantly. I realize my frustration and resultant is not directed at my husband, but at our new constant companion, Lewy. It is so sad to see my husband robbed of his short-term memory as well as the last 10 years, his ability to communicate in a comprehensible manner, his visual and auditory cognition, his self-respect, his self-confidence, his executive functioning, his perception and his understanding of what is going on around him. Fortunately, or maybe unfortunately, he is still physically capable of handling his ADLs, albeit somewhat messily at times. He has also lost 70 pounds over the last few years. We are in the process of moving "home" to Cape Cod. I am trying to find a home long-distance with multiple trips to the Cape, getting our current home ready for sale (cleaning out 40+ years of "stuff", getting painting and renovations done). The upheaval is difficult for him, but the move is necessary. We will be closer to both our families and former colleagues. Each day brings a brand new stressor and I wonder if I will break under the stress someday. I constantly pray for patience with both myself and his LBD symptoms. Thank you for sharing. It is so good to be reminded that we caregivers are not as alone on this journey as it often seems we are.

Hang in there and now that others are doing the same. Pauline (Lena)