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Well her is an update since being placed on meds for UTI. The fevers continues and the confusion and the doctors ran other tests. It was getting pretty bad had home handling his night confusion and inconsistent. The test came back positive for CMV (cytomegalovirus) and he has been in the hosp since last Friday getting meds for that but a still no fever but the confusion not any better. So today getting a spinal tap where they are going to check all kinds of viral items and see if this is effecting his brain. They feel highly unlikely that the CMV has traveled there but have to rule it out and if it isn’t there they will be reaching back out to neurologists again for further evaluation on the Parkinson’s. In my heart I feel the Parkinson’s is starting to get worse and this will be our future to deal with. Pray it isn’t but if so we will work with it and take each day at a time. Out of my control. 🙏
Replies to "Well her is an update since being placed on meds for UTI. The fevers continues and..."
Thank you so much for the update. I’ve been thinking about you and your husband, hoping the UTI was the culprit.
CMV is often one of the major players in post stem cell transplant patients. So many people have had the virus, sometimes in childhood. Once it’s in the body, it usually lies dormant. But if the immune system is compromised, like it is during our transplant recovery, it can re-emerge and cause some issues. Do you know if your husband had that prior to his SCT? I didn’t, but my donor did have CMV and we knew that going it. But the match was so perfect that the virus was a non issue. If that’s what your husband is dealing with there are antiviral treatments.
The lumbar puncture will be a good thing to have done. I had to have one too after my transplant to rule out anything that may have crossed the blood brain barrier. Once the doctor’s know, hopefully they can zero in on the cause of your husbands confusion.
Wishing you both well. Hugs.
I pray with you that they find something they can treat. I identify with those feelings of not knowing and waiting for some tests to indicate what could help.
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I so appreciate your update, @jrwilli1,
While I'm sorry to hear your husband has a CMV virus, you must be relieved that there is now a diagnosis for his problem. Are the doctors indicating that if the virus has traveled to his brain, then that would explain his mental confusion? I'll look forward to hearing from you when you get the results of the lumbar puncture.
Here is some information from Mayo Clinic's website regarding this,
https://www.mayoclinic.org/diseases-conditions/cmv/symptoms-causes/syc-20355358
I can understand your concern about the advancement of Parkinson's. This is something that we don't look forward to and I'm sure it is not easy to prepare yourself for it.
Did the medical staff indicate that there is a treatment for CMV?