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Living with MDS

Blood Cancers & Disorders | Last Active: May 17 5:49am | Replies (68)

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@jrwilli1

My husband has been seen by an oncology since 2017 where they had been watching his white counts and then in 2022 they dropped very low and found out about the MDS. While working with the new bone marrow specialists only then did we find out the he had MGUS all those years. I have mixed feeling if I would have wanted to know or not but today after being treated for almost a year and 7 + months post transplant now I wish I did know. I think we would have treated live differently. Done more traveling and maybe he would have retired sooner instead of forced retirement. Not sure. But to late for that but please if you get a chance to do a transplant do it. We have seen our grandkids grow even if by FaceTime a lot and no he has had a long roller coaster ride but at least he has had it.

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Replies to "My husband has been seen by an oncology since 2017 where they had been watching his..."

My husband was diagnosed a year ago and has had many blood transfusions because of his low hemoglobin and sometimes platelet transfusions. He is 73. He is currently on Azacyadine treatment and has had 4 treatments. Not much success so far. How old is your husband?

Kathy T