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Should I choose to do surgery right away or wait a while?

Brain Tumor | Last Active: Feb 16 7:35am | Replies (32)
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@rsfcowgirl

I'm so happy for your experience and outcome. Keep on the mend. I just learned yesterday about upcoming biological agents specific for benign meningiomas. It's a long way off yet but three patients have been treated this experimental way and all went well. This is a one location, very limited experiment. But it's promising bc they found a specific chromosome abnormality in the meningioma solid tumor they are trying to address as a treatment.
Until then, most of us can be thankful the meningiomas are not cancerous and get our best currently available treatments.
I'm so happy for you!

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Replies to "I'm so happy for your experience and outcome. Keep on the mend. I just learned yesterday..."
holly56 | @holly56 | Oct 3, 2023

Hi there,
Sounds like you are doing great at weighing in all options. Getting other opinions from hospitals specializing in brain tumors is critical. The Preston Robert Tisch Brain Tumor Center at Duke hospital in Durham NC has several clinical trials and many brain tumor experts that could also collaborate with your docs too to see if they have additional information to share or may know of other BT institutions that may. Sending good thoughts and prayers 🙏🏻🙏🏻

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cscmaryann | @cscmaryann | Oct 3, 2023

So interesting about the "upcoming biological agents" you mention. When I looked this idea up on the internet, it spoke of this treatment as if only for cancerous tumors, so I am very curious. I am meeting with a neurosurgeon tomorrow and will definitely ask about this new area. Thank you for enlightening me!

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