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Interested in how other caregivers survive
Caregivers | Last Active: Apr 28 9:40pm | Replies (96)Comment receiving replies
Hi. I share your challenge with incontinence care for my husband. Oddly, one thing that has helped me is letting go of the expectation that he would try to help with the problem—-like stopping drinking fluids two hours before bedtime, like sitting on the toilet rather than standing up and missing the toilet. I’ve come to accept that the incontinence isn’t going to change and that has helped me not feel so frustrated. Lonely? Yes. Sad? YES. Wishing for just a few minutes a day “off duty?” Yes! I don’t have answers for those. I hope you find a path to peacefulness. Hugs.
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Even with my experience as a health care provider, I have frequent bouts of impatience. I know the reasons and yet I often have verbally lashed out. My respite is gardening, house work, politics, throwing a ball to the dog. I get some
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I’m new to forum. Caregiver 24/7 for friend with Parkinson’s. He constantly wets his pull-ups and his brain cannot hold back after the he urge hits.
Knowing it’s the brain. I remind him with assistance to take quick shower. In addition, I set an alarm every 2 hrs during the day prior to 7:00pm for him to urinate.
That’s all we can do.
I also reach out and have maid service monthly to scrub bathrooms etc.
as caregiver I made stipulations whether married or Friends:
1. Put in assisted living facility; or
2. I receive a small amount of cash if the house is used to pay for assisted living.
In addition, I make the house as it’s my house to decorate. Married or not.
Last but least, I have joined activity groups like wine tours of gardens, kayak paddler beginners, and computer security groups who meet monthly.
In order to decrease the mortality rate of caregivers, it is necessary to “pay for sitters” to get away rather than “control” everything!
We need our own time and BOT be isolated!