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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1623)Comment receiving replies
I am at nearing 6 months post LT and I'm similar to several others on here. I have basically had a great recovery since my transplant in April. I have had great labs (with a couple of scary outliers) and have remained active throughout. I have had a wonderful wife as my caregiver along with support from family and friends,
However, I developed pain down my right side. This has continued and moves through the area below my scar. Ultrasounds show no internal problems. They say that it is probably from the cutting of the tissue. I understand that it takes time and I am trying to take it as slowly as they want me too. However, please don't tell then that I have been "through a major surgery." I know that; and if I forget, my body will let me know in a hurry.
Im sorry for rambling!! I have great labs, good color, to much of an appetite, don't drink and try to maintain a positive outlook. However, it is discouraging when you hurt (at different places and different times) and no one really understands.
I want to thank everyone on this forum for their support. We will get through this together. God Bless you and our donor's families.
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@hdillon7, Congratulations on your recent liver transplant. I know that you are thrilled about the good labs and test results!
My transplant was 14 years ago at Mayo Rochester. I had to laugh at your comment... "please don't tell then that I have been "through a major surgery. I know that;..." I remember that one quite well! The one that I get now is, "You mean you still have to take those medicines? You look so well?"
Related to your pain, I notice that any slight twinge of pain or even a twitch in the area of my liver transplant or my kidney transplant draws my attention. Currently, I am post cataract surgery and my full attention is on anything that is left eye or vision related. You are absolutely correct about listening to your body! I learned real quickly that over-doing meant discomfort, pain, or tiredness. I also learned since my transplant that healing, for me, took longer than pretransplant. For instance, if I get a cold, or a cut, or a bruise, or a sprain,...it takes me longer to heal. If doctor says 10 days, I can plan on 2 weeks. I hope that your pain which is likely part of healing will become less. I hope that one day you will suddenly realize that you don't hurt anymore!
Your rambling is good! I like to call it, "Sharing your experience" .
What is something you would like to share with someone who is currently waiting for a liver transplant?