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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1617)Comment receiving replies
Hi Parmcat. Thank you for sharing ur joirney. My husband is told to be prepared for liver transplant due to his liver cancer. We didnt yet apply to waiting list. My question now is how often do you have to visit clinic after transplant is done. Is there like mandatory observation, tests u have to do every week, month or some in clinic procedures?! My husband is USA citizen, but we live in a different country. So my concern now do we have to stay in USA all the time or after transplant we can go back.
Replies to "Hi Parmcat. Thank you for sharing ur joirney. My husband is told to be prepared for..."
Hi @vera77, you are asking very good questions that will need careful consideration for doing a transplant in US when you live elsewhere. There is a period of time directly after transplant that you as the caregiver and your husband would need a short-term stay near the clinic where you get the transplant as well as regular follow up appointments.
Mayo Clinic staff have written these blogs that outline a bit more detail about liver transplant at Mayo.
- Liver Transplant at Mayo Clinic https://connect.mayoclinic.org/blog/transplant/newsfeed-post/liver-transplant-at-mayo-clinic/
- What to Expect: Post Transplant Care https://connect.mayoclinic.org/blog/transplant/newsfeed-post/what-to-expect-annual-post-transplant-follow-up/
- What to Expect as a Transplant Caregiver https://connect.mayoclinic.org/blog/transplant/newsfeed-post/what-to-expect-as-a-transplant-caregiver/
@rosemarya @jerrydrennan @amyintucson @arqui02000 @2ndlvrxplantmom @karen51 @parrot53 @eparker6 and many others can share their first-hand experiences with post liver transplant care and short-term stays.
Are you thinking of applying to Mayo Clinic for transplant?
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I don't know what is 'mandatory' but can share our experience. We moved to Arizona from California once he was listed. Within 10 days were were blessed with a transplant. Two months after transplant, and a pretty easy recovery, we were told we could go home. He gets weekly blood tests done, which I print out and send to Mayo Clinic, via their patient portal. We returned to Arizona for one day of tests and appointments five months after transplant. There have been a number of zoom video sessions, a ton of messages back and forth and a number of phone calls, some after hours due to continuing bumps in the road to recovery.
Mayo has been there for us whenever we need them. We will be returning to Arizona, for a one year follow-up in January.
We considered transferring his care to a local transplant clinic, something they were willing to do, but decided to stay with Mayo Clinic. It has been a challenge at times with the need to have ultrasounds and low white blood count required injections. We are blessed with a wonderful local dr willing to help with these needs.