← Return to Has anyone had IVIG Infusions for Neuropathy?

Discussion

Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

Comment receiving replies
@rowun4

I’m not sure why I’m here. I do have PN, but I recently saw an allergist/immunologist & he brought up this as a treatment. But he didn’t say much about it beyond it was an infusion that might help. Blood tests showed abnormalities, low in more than one area of IgG.
I guess I’m curious about when the treatment is used: what conditions it treats. Things like that. I don’t expect a response, but I don’t trust just surfing the internet for medical advice .

Jump to this post


Replies to "I’m not sure why I’m here. I do have PN, but I recently saw an allergist/immunologist..."

rowun4
I have common variable immune deficiency which is a primary immune disease. I had very low IgG that caused me to have many severe infections throughout most of my life.
Before my insurance pays, the monthly cost of my daily infusions is over $17,000 dollars and not all insurance companies pay for this. I had to change insurance coverage because the insurance I had previously would have left me paying a few thousand a month. It might be a good idea to check and make sure that the insurance that you have would pay for it. Some insurance companies leave you paying for 20% which can end up being a lot of money.
Did your doctor give you an actual diagnosis? If you are able, maybe you should go back to your doctor and ask him if he can tell you a little more about your low IgG blood work. I am not familiar with Immunoglobulin being used for neuropathy so someone else on this site will have to inform you about that.
I hope that you can find something that will help you.

@rowun4
Hi,

IVig treatment can take many forms. I have it once a month, (as slow as possible) for several reasons to include low levels of IGg. The low IGg means we do not have the antibodies to fight off the different diseases of the outside world. They are replaced with the IVig treatment, sometimes one or two treatments is enough. My chemotherapy caused many issues and most of my doctors are working on them.