Has anyone had IVIG Infusions for Neuropathy?

Forgot to mention I had IVIG infusions also and they did nothing for me so my doc stoped them.

Just got done my 3 days of infusions
I haven't noticed that much improvement

Hello could you please ask your friend to e mail me aa
I am considering IVIG ,
Many thanks

@harley22
Hi,

The IVig infusion is not a pain killer, it is a treatment. The antibodies build up over time and slowly work. Neuropathy can only be treated, not cured. So, if if your Neuropathy does not get worse, I consider that an improvement. You need to do it for several months and the neuropathy might not be as bad and should not get worse.
I do a multi-faceted approach and am doing so much better than 3 years ago.
JFN

I’m not sure why I’m here. I do have PN, but I recently saw an allergist/immunologist & he brought up this as a treatment. But he didn’t say much about it beyond it was an infusion that might help. Blood tests showed abnormalities, low in more than one area of IgG.
I guess I’m curious about when the treatment is used: what conditions it treats. Things like that. I don’t expect a response, but I don’t trust just surfing the internet for medical advice .

I know IVIG is not a pain killer, my neurologist told me it should help with the pins and needles I’m having in my feet.

Thank you, Harley22 for that common sense testimonial. I finished my 5 days a couple of weeks ago with no noticible improvement. Now I know to not give up. (Not that giving up was really an option.) Also, I would like to ask a question: Are there any PN's out there without the usual numbness/pain complex? Just balance problems? My lack of symptoms has made it difficult to be diagnosed. Additional input would be helpful.

@rowun4 @harley22
It might help, it does not work immediately, patience, diet, and exercise. I also have used CLT and shock wave.

JFN

rowun4
I have common variable immune deficiency which is a primary immune disease. I had very low IgG that caused me to have many severe infections throughout most of my life.
Before my insurance pays, the monthly cost of my daily infusions is over $17,000 dollars and not all insurance companies pay for this. I had to change insurance coverage because the insurance I had previously would have left me paying a few thousand a month. It might be a good idea to check and make sure that the insurance that you have would pay for it. Some insurance companies leave you paying for 20% which can end up being a lot of money.
Did your doctor give you an actual diagnosis? If you are able, maybe you should go back to your doctor and ask him if he can tell you a little more about your low IgG blood work. I am not familiar with Immunoglobulin being used for neuropathy so someone else on this site will have to inform you about that.
I hope that you can find something that will help you.

What are CLT & shockwave?
( I swear I live in a wasteland when it comes to medical care). I’ll try finding it, but expect to hit some really crazy info.
Thanks!!!