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Interested in how other caregivers survive
Caregivers | Last Active: Aug 4 11:08am | Replies (123)Comment receiving replies
Good morning, @alone I'm Scott, and I was my wife's caregiver for her 14+ year war with brain cancer. I came to Connect because I was feeling so incredibly overwhelmed and isolated by my caregiving.
Caregiving, at least for me, was a constantly changing scenario. Often those changes occurred literally overnight. You mentioned toileting and memory. What questions do you have about those?
I'm happy to share my experiences and what I learned during our journey.
Strength, Courage, & Peace
Replies to "Good morning, @alone I'm Scott, and I was my wife's caregiver for her 14+ year war..."
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Hi Scott (@IndianaScott). I'm 79 yo husband caring for 75 yo wife who struggles with a host of serious health issues. I haven't heard of Lewy Body Disease till today. She hasn't been diagnosed with that. I'm disabled with cerebellar ataxia but I push myself to exercise as much as I can. Dealing with depression (lifelong) I see a mental health counselor and receive Transcranial Magnetic Stimulation (TMS) to help me cope with increasing isolation and discouragement. She refuses to go to an assisted living facility. She wavers between mentally sharp and mentally adrift. She's in constant pain. A major concern is her COPD. Another is PTSD from spending two weeks in a dreadful rehab facility after more than a week in the hospital. I'm doing the best I can but it's a real struggle. I have no intention of leaving my dear wife, but I wonder if you have any thoughts about what I might do.