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Undiagnosed - autoimmune?

Autoimmune Diseases | Last Active: Oct 14, 2023 | Replies (39)

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@rockmama

Unbelievable, but I have very similar issues. I’ve never related them all, but am actually just recently beginning to think possibly autoimmune as a retired doctor friend of mine suggested. My hearing loss and tinnitus was diagnosed many years ago as meniere’s disease due to many bad ear infections asa child. I also was told I have unexplained “inflammation” innmy lungs and have an inhaler . Tge pulmonologist thoughtit might be due to my recurring Epstein Barr virus.I too have tachycardia and also had a couple episodes of v tach and complete heart block a year ago. I am now on meds for the arrhythmias and my electrophysiologist said, yes, it could be caused by autoimmune disease. Good luck with your search and we should keep in touch. I will let you know if they find an autoimmune disorder.

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Replies to "Unbelievable, but I have very similar issues. I’ve never related them all, but am actually just..."

@rockmama Welcome to Mayo Clinic Connect! I think you’ve found the right place! You’ve described many annoying health problems and you’ve seen several doctors, but you don’t have a diagnosis. The electrophysiologist thinks it could be an autoimmune illness, so why not find out!
Can your primary care doctor refer you to a rheumatologist who can help put the puzzle pieces together? Can you call tomorrow?

Thank you for touching base.
I also have a lung disorder called bronchiectusus.
They say that is probably autoimmune also because I have rheumatoid arthritis.

Thank you for sharing!! It’s great to hear so many other people being able to relate to the multiple symptoms with no answers. Has your hearing loss got worse over time? Since they can’t tell me what caused it they also can’t say if it will get worse. It’s always in the back of my mind that I could wake up deaf one day. I will keep you updated for sure as I move through this journey. Hopefully if one of us gets a diagnosis we can maybe help connect the dots for the other person. Thank you again for reaching out.