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Anyone diagnosed with Gastroparesis?
Digestive Health | Last Active: Apr 10 5:06pm | Replies (204)Comment receiving replies
Hi guys, I'm new to this disussion post, but not to MCC. I had a 9mm precancerous polyp removed from my transverse colon about 2 weeks ago now, and that's also when they determined I've got gastroparesis. The last 2 years have been h311, and only seem to be getting worse, physically. My Dr gave me Motegrity 1mg recently to try, and I ended up getting every side effect in the book, so I quickly discontinued that medication. He wants me to speak to a dietician re: meal planning in a couple months, but in the meantime, I continue to feel awful everyday. 95% of what goes in my body is rejected, and there seems to be no pattern. I'm so unbelievably tired and frustrated, and my fear is that I'll end up where my good friend is, and that's with a permanent feeding tube and not much hope or options ahead. I'm an optimistic kind of girl, but I am also human, and get down sometimes. I don't understand the 'why's' of it all, and that's ok, but I would like to believe there's some relief for me (and so many of you) out there. Does anyone have any suggestions re: any part of this journey, or treatment options etc? Would be greatly appreciated. Thank y'all so much! 🙂
Replies to "Hi guys, I'm new to this disussion post, but not to MCC. I had a 9mm..."
4/7/24
I'm starting my journey again, when I was diagnosed with gastroparesis just before I was having gastric bypass surgery and no one ever told me this never goes away. I had to do my own research on it. Plus I had a cervical neck surgery that fused vertebrae and I have pins, screws, plates, and rods in my neck. Plus the surgery was done in Florida, here doctors can only be sued if you find out they did the surgery wrong in the 1st 2 years after the surgery. I think that is why doctors flock to this state. Because by the time you go from one doctor to another, you may have missed the deadline to sue them. Now I have to find a specialist who is a GI doctor and knows what to do with gastroparesis. My current GI does not specialize in this and I also have liver issues not related to alcohol which had to do with the diabetes drugs and painkillers they had me on when I kept having accidents and hurting my back, breaking toes, breaking my tailbone. Then to top it off I'm super sensitive to medication I get the"rare" side effects no one gets. The neck surgery wasn't done correctly because they had to go in from the back of my neck and I have been on a Fentanyl patch since 2019, now I'm at 12mcg, but still have plenty of pain. I don't know how my new pain management doctor will be able to help me, because the last one didn't care about his patients. He basically asks you about your pain level and what you want. God help me, I pray and ask God to keep healing me. I no longer have diabetes, no thyroid problems, and the cirrhosis of the liver is gone, I just have scarring. I want to leave Florida, but moving in our economy sucks right now. Plus I won't move to a blue state, sorry to anyone out there who does, I'm not dissing anyone.
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Welcome, im very sorry to hear about your struggle and i can relate to you trying to find a path forward i have struggled with gastroparesis for years myself . Ask your gastroenterologist about Domperidone. For me it has help greatly is very safe to use and has been around for years. Also as for your diet try this link.
https://www.livingwellwithgastroparesis.com/about
She has you tube videos, books and free diets menus withs a life of experience because she also has Gastropareses herself. Hope fully there is something in there to get you some answers best of luck to you.