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Interested in how other caregivers survive
Caregivers | Last Active: Apr 28 9:40pm | Replies (96)Comment receiving replies
@alone Welcome to Mayo Clinic Connect! You’ve come to the right place. There are many members in your same situation and I’m sure they would be glad to share tips and how they cope.
https://connect.mayoclinic.org/discussion/new-to-this-discussion-group-1/
Maybe this website will give you some help while we wait for members to jump in.
https://www.powerfultoolsforcaregivers.org/
But first, maybe you can tell us a little more about your situation. Who are you a caregiver for and for long? What are your specific frustrations besides toileting and memory?
Replies to "@alone Welcome to Mayo Clinic Connect! You’ve come to the right place. There are many members..."
I am the caregiver for my husband who has dementia. This has been true for over a year.
Frustrated at sometimes feeling "trapped" at home in a situation I can't leave and not worry what might happen. He has type 1 diabetes which really complicates the situation.
I am caregiver for my wife over six months. She is diagnosed with breast cancer that spread to her spine. Now going through treatment. Besides dealing with care for incontinence , also is challenging dealing daily with her condition and not able to attend appointments sometimes because of her anxiety and strength. Any inputs are appreciated.
I am a caregiver for my wife who needs a liver transplant.
Its been a tough journey to this point not realizing what an important organ the liver is. When it shuts down the body no longer filters itself and toxins go to the brain causing encephalopathy, not knowing for the first 2 years why my wife developed instant dementia, till we came to Mayo and meet a wonderful Doctor who told us what was wrong within the first 5 minutes of meeting him.
This is a struggle for me as all of my spouses duties have now become mine. Trying to keep up is a challenge for me. We are so looking forward to moving ahead now with the transplant.
Hello all: I am new to this group and new to taking care of my husband recently diagnosed with dementia and find myself having difficulty finding the patience in dealing with the repeated asking of the same questions over and over, sometimes this happens in the same hour. Is this because he cannot remember the answer that I just gave him? Also, he is hard of hearing. We purchased hearing aids, and he will not wear them. I want to understand so that I do not get so frustrated. He is in the early stages and is on Aricept. Hoping to slow the progression. He is very functional, showers, fixes his breakfast and lunch. Just gets very confused with other simple tasks. Any suggestions would be helpful. Thank you.
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I have been a caregiver for 5 years. Would like to communicate with others in same situations.