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How many of you are on your second flare-up?
Polymyalgia Rheumatica (PMR) | Last Active: Oct 7, 2023 | Replies (18)Comment receiving replies
I have PMR and was on prednisone for 2 and a half years. I took my last dose of Prednisone on June 30 th. Now, the beginning of Oct, I have pain in neck, shoulders, and hips. At night when I try to sleep, it seems like I hurt all over. I am debating on restarting the prednisone. Is this common?
Replies to "I have PMR and was on prednisone for 2 and a half years. I took my..."
I have decided not to go back on Prednisone. I am working it out, trying a few different things to work through the pain. So far so good! I will keep you posted. Thank you for all your support.
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After about two years of PMR, I was down to 1 mg. of Prednisone, and pain free. That lasted a couple of weeks, and my left hip began hurting. For seven mouths, my hip has usually been in a mild to medium flare. Immediately applying BiOFREEZE, after getting up in the morning, is very soothing. My hip is very slowly improving. During this time I have been on 2 ml. of Prednisone.
My Rheumatologist has told me it may be necessary for me to take a low dose of prednisone the rest of my life.
Fortunately, after about three years on Prednisone, my bone density is OK. Also, the 4 pounds I gained are gone.
Staying active is a must.