November appt in Phoenix. New wrinkle: MSA-C has been decided by neuro brains to be my disease. And it is so convenient, too. No meds for it, it is basically a death sentence. There. I am now in a box that can be identified, unlike CLIPPERS. From onset, you have 5-9 years to live. My onset with CLIPPERS was late 50's, and apparently Mayo must have misdiagnosed me, here I am almost 15 years later. These guys don't listen, and I do wonder how much they know about CLIPPERS. My NP shows more interest than these guys. Nobody wants to draw outside the line, it seems. I am sure Barrows will follow suit.
One good thing: between diet and exercise, I am doing fairly well on pred.
Arizona is not a good place for any experimentation.