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My daughter has Klippel-Trenaunay Syndrome.

Bones, Joints & Muscles | Last Active: Apr 20, 2016 | Replies (3)
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@alysebrunella

Hi @paulineaustralia, and welcome to Connect. Thanks for reaching out - I applaud you for being such a strong support for your daughter.
I found some information on the types of treatment Mayo Clinic offers for KT Syndrome (http://www.mayoclinic.org/diseases-conditions/klippel-trenaunay/care-at-mayo-clinic/treatment/con-20035785). I understand that it's unlikely you'll be able to travel to the clinic, I hope this link gives you an idea of the methods of treatment available for this condition.
Is your daughter seeing her primary physician? Or have you discussed seeing specialist?

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Replies to "Hi @paulineaustralia, and welcome to Connect. Thanks for reaching out - I applaud you for being..."
paulineaustralia | @paulineaustralia | Apr 19, 2016

Hi it's Pauline again yes Jessica is seen by Dr Mark Moroney at Ipswich<br />
Hospital Queensland, Orthopedic he says she needs a knee replacement but<br />
she is too young (she is 18 and no where near over weight) I'm concerned if<br />
they do, do this they never have mapped her veins or had a vascular<br />
radiologist of surgeon in with her when operated on. Also she sees Dr John<br />
Coulston vascular radiologist at Royal Womens Hospital Brisbane I think he<br />
worries about doing anything now but especially her foot. She is not over<br />
grown her calf muscle is smaller so I have been told she has muscle wastage<br />
which I do not believe she is mostly in active due to pain. When she isn't<br />
in pain she is over active. The only pain relief the give is panadol and<br />
ibuprofen which does nothing. We would appreciate anything you can do to<br />
help.<br />
Yours Hopefully<br />
Pauline and Jessica Watkinson<br />

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