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@virgo1952

Hi dilly. Been following these chats about chronic c-diff. Again, always learn from all of you. As you know (don’t want be redundant) I also had a positive test for c-diff after my colon resection. Two rounds of antibiotic after over two months of complaints to my surgeon. (I emailed my pcp, she sent back to the surgeon). I wouldn’t have the second round if I hadn’t become a total pain in the a... about it. So, I guess what I am saying is the test is expensive and some doctors sometimes ignore the symptoms if not bad enough. I know this because it happened to me. I was told by my surgeon’s nurse (never talked with my surgeon after my 20 minute post-op) that the office didnot retest and I was to stop calling the office with my complaints. Now, I’m not saying that your doctor (office) is like that. I am saying that you are your best advocate and-it seems like if you are experiencing this rollercoaster of infection/antibiotic treatment, maybe it’s time for a different approach. Not a doctor, so don’t know what it is. I’m sure there r qualified medical staff that can address your issues. All you have do is read the history of chats to see that other members have had the same ups and downs of c-diff. Covid has brought good hygiene education to many, which is a good thing. Don’t stop asking your doctor(s) for answers. They r not living your life. My “new” normal after 11/2 years is not my “old” normal”. I’m not-settling for anything but the “best” of my situation. If that means sending emails or going over the dr’s head to administration, I will and have done it. Your body, your life. Virgo

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Replies to "Hi dilly. Been following these chats about chronic c-diff. Again, always learn from all of you...."

I’ve been making a pest of myself to the gastro office staff since the end of October when I got diagnosed with diverticulitis. I had divert back in 2008 and things just seemed different this time, although maybe being older made a difference. But since there are three drs in the practice there are quite a few office staff. I think they all know my voice by now. But I was scared. Then another bout of divert at the end of Feb and then the antibiotic for that led to c-dif. My gastro was pretty responsive, but I think running out of ideas so he sent me to a Dr at Georgetown Univ. But as Virgo said, you know your own body and when things don’t seem quite right you need to try to find out why.