Thank you for your support. My local hematologist/oncologist sent me to Mayo. So I was there over a week ago for 8 days of testing. They are looking for Amyloidois in my GI track and nervous system now. So I go back in early Nov.

I am starting to understand the healthcare system more and more…if you don’t fit into the box they don’t do much in regards to treatment. I just want one doctor to look at my symptoms, labs, bone marrow results, Bence Jones in urine, etc and fight for me. I have been so fit and the epitome of health all my life. Coached CrossFit and competed. Then all this started.

I am, I believe, am way too young to be feeling like this.

I greatly appreciate your support!