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Anyone else have Symptomatic MGUS?

Blood Cancers & Disorders | Last Active: Nov 28, 2023 | Replies (73)

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@remainanonymous

Oh wow, that all sounds nightmarish - so sorry you're going through all that. I can't seem to get my head around the fact that wealth is literally tied to morbidity and mortality. I wonder where a supportive system exists. I know we can migrate to NZ and wonder how the care is there.

It's sounding like the costs between US and AUS care are likely similar, but that of course, a fancy job will bump us up into better care. I hope you get answers and some relief.

I'm sitting tight in my US state right now to max out our out-of-pocket maximum (one of the benefits of living in the poorest state). I'll do a lot more research before deciding where to go next. Another huge advantage of returning to AUS is that they minimize fracking (compared to the US) and don't have the nuclear weapons and power industry that likely contributed to my MGUS (I've spent 5-6 years in weapons testing "downwinder" areas). Can't make this stuff up. Utterly heartbreaking.

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Replies to "Oh wow, that all sounds nightmarish - so sorry you're going through all that. I can't..."

Humans aren’t so much individuals with value anymore, sadly. It’s moreover a system where turning over fiat currencies is much more attractive, and if positioning a human in the supply chain to propel fiat currency profitability in the direction desired, then it seem a so-be-it situation. Aka just a cog in the wheel of the movement of money towards the top end of the pyramid.
I really have no idea how ‘health systems’ and ‘profit’ can be linked in any way that is ethically or morally able to be upheld, but there you go. Health systems are inherently, overarchingly, required to be altruistic if they are to be applied with any form of equality, however they’re operated as the exact opposite, imho. And the bad bit is that humans are convinced it’s ok to have profitability directly off of their sufferings. It’s an ethical dilemma of frog brought to slow boil…
I’m so sorry you’re having to live with pollution and other environmental hazards that aren’t sufficiently controlled to eliminate human health casualties. The world has got it backwards I believe.
My frequent rhetorical question is what are the international govts doing if they aren’t serving the people? The only response I can give myself is ego tripping and profitability maximisation, arguably against the mandate that put them in office.
If it was possible without a coup, I would like to give the sack to many who are in control, and request the resumes and evidence of morality (ie: show me what genuine good you have done prior to being hired) of replacements 😉
The situation regarding natural resource capture here is one that is unclear: there are lots of things that happen behind the scenes that are kept from the public till it’s a done deal and thus too late to object. For instance, the disease load in areas like Port Kembla and surrounds, where fallout of the steelworks rain down each evening and into the night, giving the atmosphere an eerie metallic glow, and a smell that literally hurts your body when you inhale, aren’t really published clearly (from what I couldn’t find, anyway), however these people live here regardless, without any changes besides who is making the current speech containing the latest iteration of placation blather.
It’s not the only place where there is dangers spewed into the environment; we have areas of waterway pollution, as well as toxicity in earth where housing has and is being developed - not so great for your kids playing in the yard.
Can I kindly and gently suggest to look deeply into where you’d expect to land and set down roots here? And maybe even look into moving to the Eu countries that have excellent social and health supports, like Germany, Finland, and Norway? Do not go to England, would be my advice at the present time.
It is heartbreaking, and I am very disheartened by the methodology that humans use to interact with each other, seeing a person as a means to make money.
Who said the love of money is the root of all evil? 🌺