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@mumma

Hi there I have PV and jak 2 and am on hydroxy they have now got the right amount each day to control my bloods
I was wondering if anyone else with this condition has symptoms such as uncontrollable fidgety legs and tingling sensation s

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Replies to "Hi there I have PV and jak 2 and am on hydroxy they have now got..."

I was diagnosed in June with PV at 48. Since, I’ve noticed that my body has a difficult time settling down to sleep. My body just seems restless. I wake up more often in the night and have a hard time sometimes getting back to sleep. I’m also starting to go through menopause so don’t know if the poor sleeping is because of that. I’m hot, and can never get comfortable. I was told I have some arthritis in my left hip that bothers me all the time, again not sure if any and all are related to one another or are separate issues. Just getting phlebotomies 1x month right now with no medication.